My son is three and a half weeks old. After birth, he spent 18 days in the neonatal intensive care u…

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My son is three and a half weeks old. After birth, he spent 18 days in the neonatal intensive care unit (NICU) due to pneumonia and jaundice. We were discharged, and everything seemed okay, but his sclera remained yellow. They said it would pass. Our pediatrician visited at home and said this wasn't normal and we needed to get a bili light. Measurements showed his bilirubin level was 200, which is high (normal is 70-90). For the past 4 days, it's been a struggle: he screams inconsolably with the mask on, and also when held. He's only had about 4 hours of light therapy in total over 4 days, which is very little. His sclera are still yellow. Has anyone else experienced this? Did it resolve on its own? Is there hope?
Who has babies under a month old, newborns? How long do they sleep? Mine sleeps all the time... With…
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Olga
We were given a medication for the liver to help the jaundice clear up faster. They also said it would go away from bottom to top.
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Yuliya
We had it at the maternity hospital; it was easier there, as the baby is smaller, but with my tears and their cries. My three daughters lay under the lamps for about 19 hours a day. Everything normalized within two days. This is important—you need to endure it. Bilirubin has a negative effect on the whole body and on the brain.
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Antonina
This is very little for the result. My baby has jaundice and breast milk jaundice. My daughter's bilirubin quickly went down (without the lamp) on expressed pasteurized milk, and my older son was temporarily switched to formula. Although it might not be due to the milk composition "slowing it down", but rather due to the baby being sleepy, feeding poorly, less fat in the letdown, and thus less fat-soluble bilirubin being excreted.
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Leysan Borodulya
We've been discharged! The blood test from the vein showed low bilirubin, so they didn't need to use the lights. They said it's physiological jaundice and will pass on its own. Her eyes and head are also yellow.
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Lyali
What about the blood type?
At discharge on day 22, my son's bilirubin was 160 and it rose again after two weeks, fully resolving by 4 months. I gave my son Ursodiol, and we monitored his bilirubin levels monthly.
It always takes longer to clear from the head than the body.
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