I have a large parathyroid adenoma, hyperparathyroidism, and moderate hypercalcemia. I stumbled upon…

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I have a large parathyroid adenoma, hyperparathyroidism, and moderate hypercalcemia. I stumbled upon this misfortune in February. Based on scintigraphy and tests in May, I was scheduled for November 9th. Why such a long wait? They explained that they don't do elective surgeries in the summer due to high risks. 🤷️ Oh well. August arrived, and I started falling apart. By the time all the tests were gathered and completed, it was the end of September. All my major joints were suffering, with osteoarthritis grade 1-2 in the acute phase. I was sweating through my clothes at night, and my pelvic bones ached so unbearably that I thought, 'That's it, I probably have cancer and will die soon.' The pain was 24/7, and my temperature reached 37.7°C (100°F). I'd wake up at night from the pain and just lie there, quietly crying from helplessness. I started active treatment as prescribed by my therapist, but there wasn't much effect. The doctor suggested it might be the antidepressants I'm taking (sertraline). I was skeptical about this – I haven't been taking it for months. But in the last few months, I felt like things had gotten worse, like I'd fallen into a pit. When painkillers didn't help, I decided to stop sertraline before the surgery. I tapered off gradually, as recommended. I had no withdrawal symptoms at all. And that was it. The sweating stopped, and my pelvic bones stopped hurting. My knees ache sometimes, but now supportive treatment is enough to get everything back to normal. We're waiting for my calcium levels to drop after the surgery. It's so wonderful when nothing hurts. My mood improved, and the desire to lie around like a vegetable disappeared. I started preparing for the surgery: getting tests done, undergoing examinations. For the first time in my life, I had an ultrasound of my heart and lower limb veins. Everything was fine, which was a relief. Then I went to my gynecologist for a note stating there were no contraindications. I had seen her in May (I take my health seriously) – I get tested for cancer and infections annually, have a check-up and an ultrasound. In September, along with my therapist's examination, I had a general health screening (which also included a doctor's check-up). Everything was clear. Of course, when I went back in October, she just gave me a note without an examination. At that moment, I thought, 'She gave it without examining me, what if I'm pregnant?' But that thought just flashed by. It's the favorite thought of all anxious people – when your mind is full of possibilities, and one of them is the worst-case scenario. I picked up my documents and continued with my hospital appointments, had an ECG with a report – also all excellent. I was glad that my terrible well-being didn't seem so bad based on the test results. Oh yes, I also caught a virus from the kids. Like in a commercial: 'My nose is stuffy and runny.' I haven't been sick like this in a long time. All my hope was that I would recover before the surgery and my blood test results would normalize. To be continued in part two...
Comments
Kondrateva Ekaterina
I have three parathyroid glands like this. According to my tests, the fourth one is still holding up. My doctor told me not to panic and that if anything happens, they'll just remove the affected ones. The body only needs half of one parathyroid gland out of the four.
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Tatyana
Can you please tell me if you had any other tests done besides parathyroid hormone?
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Kondrateva Ekaterina
Tatyana I'm not the author. An ultrasound can show if the parathyroid glands are enlarged, which is not normal. Also, get a detailed analysis of calcium metabolism and thyroid hormones.
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Elena
Tatyana detected initially on ultrasound. Then came the tests for ionized calcium, total calcium, albumin, parathyroid hormone, and all thyroid tests.
The tests, unfortunately, confirmed the diagnosis suspected on ultrasound. Then came the scintigraphy with radioactive iodine to see if it was benign or malignant. It turned out to be a benign adenoma. Nevertheless, it really affects my health quite a bit.
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Elena
Kondrateva Ekaterina Are yours large? Mine is 186 parathyroid hormone and a 2.5 cm adenoma.
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Elena
Kondrateva Ekaterina Were you already pregnant when you received the diagnosis, or not?
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Tatyana
Tatyana Thank you. Wishing you robust health!
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Elena
Tatyana thank you so much 🙏
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